Day 86. I was released from the hospital over the weekend, and it is a great relief to at least be at home. It is a more stimulating environment to sit around in, there are more foods I can eat, and it is good to see more of Denise, Kaitlyn, and the animals.
I can eat small meals- we are trying to jump start my GI tract after almost two months of intravenous feeding. I still will be on the intravenous feeding for about a month, using a home portable IV unit, until we taper off. I also do one other IV infusion at home which will end June 3.
One of the side effects of the drugs and the IV food is the extreme edema in my feet and legs. I estimate I have about 15 extra pounds of body weight. When we got home, Denise went up to Nokomis Shoe Shop and bought a cheap pair of size 16 New Balance shoes so I would have something on my feet other than Ace bandages. Climbing a flight of stairs takes considerable effort.
All in all, I have probably about two more months of recovery from what was a very severe case of GVH (see other posts for details) as well as the quarantine period, although I can go outside if I wear the breathing mask.
More soon, I hope.